Abstract
(Englisch)
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Survivors of AYA cancer are at risk of treatment-related mortality and morbidity (late effects). The impact on the quality of life (QoL)of AYA cancer survivors and their families, as well as the societal and economic burdens, is significant. However, these impacts canbe prevented or reduced by long-term, systematic screening and follow-up (Survivorship Care), which enables the early detection oftreatable late effects and timely interventions to preserve health, increase empowerment, manage chronic conditions and improve QoL.PanCare4AYA will improve Survivorship Care for AYA cancer survivors across Europe by developing an international clinical guidelinefor screening and follow-up. This guideline will be implemented via a novel person-centred screening programme (AYA Cancer SurvivorScreen). An implementation study involving 1,000 AYA cancer survivors in 11 European countries (Croatia, Czech Republic, France,Germany, Italy, Lithuania, Netherlands, Norway, Sweden, Switzerland, United Kingdom) will be conducted to test the AYA CancerSurvivor Screen programme, including peer support. The study will look at effectiveness (empowerment, mental health, psychosocialfunctioning and other QoL-related outcomes), healthcare delivery and screening-related health, experiences of AYA cancer survivorsand HCPs with implementing the state-of-the-art screening programme within a range of different healthcare settings, and feasibility.Innovative digital tools will be used in France, Italy, Lithuania and Netherlands. Ensuring the scalability of the AYA Cancer SurvivorScreen programme is crucial for achieving enduring, real-world improvementsto Survivorship Care for AYA cancersurvivors. Therefore,the project includes the assessment of barriers and facilitators for the screening programme and development of freely available materialsto support sustainable maintenance and scale-up of AYA Cancer Survivor Screen in additional clinics in future. This action is part of theCancer Mission cluster of projects on “Quality of life (AYA)”.
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